Statement of Need
Promoting Excellence in End-of-Life Care was a national program of the Robert Wood Johnson Foundation (RWJF) dedicated to facilitating the long-term improvement in health care for dying patients. Promoting Excellence developed peer workgroups that engage in ongoing communications among key leaders across clinical disciplines to improve end-of-life care for several specific populations. Amyotrophic lateral sclerosis (ALS) is one of the specific populations identified for improving end-of-life care.
The Convening Process
The Promoting Excellence in End-of-Life Care program chose a tactic entitled Peer Workgroups, which consist of small groups of clinicians and researchers who offer high-level clinical experience in specific niches of medicine. Promoting Excellence approached The ALS Association (ALSA) to help establish and to manage the ALS Peer Workgroup. The goal of the ALS Workgroup was to provide recommendations on how to improve palliative and end-of-life care specific to patients with ALS. These recommendations are targeted toward multiple audiences including health care providers, health care policy-makers, educators, researchers, patients and families, as well as professional and patient advocacy organizations.
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Promoting Excellence in End-of-Life Care was a national program of the Robert Wood Johnson Foundation dedicated to long-term changes in health care institutions to substantially improve care for dying people and their families. Visit PromotingExcellence.org for more resources.