Promoting Excellence : Huntington's Disease Recommendations to the Field : Professional Organizations

The Promoting Excellence Huntington's Disease Peer Workgroup proposes that The American Medical Association (AMA), the American Neurological Association (ANA) and American Society of Human Genetics (ASHG):

• Develop specific training programs for physicians and genetic counselors regarding the implications of HD genetic testing and counseling and involvement of all members of affected patients' families, whenever possible and appropriate.
• Modify the AMA Education for Physicians for End-of-Life Care (explained in Appendix B), by developing new curricula to address specialized training needs of providers working with people with HD and other neurodegenerative diseases.

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Promoting Excellence in End-of-Life Care was a national program of the Robert Wood Johnson Foundation dedicated to long-term changes in health care institutions to substantially improve care for dying people and their families. Visit PromotingExcellence.org for more resources.