End-of-Life Resources
Online
There is a growing
body of resources related to end-of-life care online.
Many of the
resources mentioned here will provide links to other
resources directed
to health care professionals as well as to the
general public.
An extensive listing is also available on the
Promoting Excellence
main
Web site.
PEELC - Promoting Excellence in End-of-Life
Care
www.promotingexcellence.org
The site provides information and tools used by
innovative demonstration
projects to provide hospice and palliative care to special
patient
populations and in challenging clinical
settings.
EPEC Project - Education for Physicians on
End-of-Life Care
www.EPEC.net
This site provides teaching modules, handouts,
PowerPoints, and
facilitator's guides designed to provide physicians the
clinical competencies necessary to provide quality
end-of-life care.
EPERC - End-of-Life/Palliative Care Education Resource
Education Resource Center
www.eperc.mcw.edu/start.cfm
EPERC is a central repository for peer-reviewed
educational training
materials and information about end-of-life
issues.
CAPC - Center to Advance Palliative Care
www.capcmssm.org
This is a resource to hospitals and health systems
interested in developing
palliative care programs.
ELNEC - End of Life Nursing Education
Consortium
www.okabcd.org/ELNEC.htm
A comprehensive, national education program to
improve end-of-life
care provided by nurses.
AAHPM - American Academy of Hospice and
Palliative Medicine
www.aahpm.org
The premier organization for physicians dedicated to
the advancement of
hospice/palliative medicine, its practice, research
and education.
NHPCO - National Hospice and Palliative
Care Organization
www.
nhpco.org
A nonprofit membership organization representing
hospice and palliative
care programs and professionals in the United States.
IICN - Inter Institutional Collaborating
Network on
End-of-Life Care
www.growthhouse.org/iicn.html
This shared online EOL community links major EOL
organizations
around the world.
City of Hope National Medical Center
http://mayday.coh.org
A central source for collecting a variety of
materials including pain
assessment tools, patient education materials,
quality assurance
materials, end-of-life resources, research
instruments and other
resources.
Toolkit of Instruments To Measure End-of-Life Care
www.chcr.brown.edu/pcoc/toolkit.htm
A collection of instruments used to measure the
quality of care and quality of life for
dying patients and their families.
Mental Health Resources
Online
NMHA - National Mental Health Association
www.nmha.
org
This nonprofit organization addresses all aspects of
mental health and
mental illness.
APA - American Psychiatric Association
www.psych.
org
A medical specialty society ensuring humane care and
effective
treatment for all persons with mental disorders,
including mental
retardation and substance-related disorders. Its
vision is a society
that has available, accessible quality psychiatric
evaluation and effective
treatment.
NAMI - National Alliance for the Mentally Ill
www.nami.org
This is the largest nonprofit, grassroots, self-help,
support and advocacy organization of
consumers, families, and friends of people with
severe mental illnesses,
such as schizophrenia, major depression, bipolar
disorder,
obsessive-compulsive disorder, and anxiety disorders.
National Mental Health Consumers' Self-Help
Clearinghouse
www.
mhselfhelp.org
A consumer-run national technical assistance center
serving the mental
health consumer movement by connecting individuals
to self-help and
advocacy resources, and offering expertise to self-
help groups and other
peer-run services for mental health consumers.
NASMHPD - National Association of State Mental Health
Program Directors
www.
nasmhpd.org
This Organization advocates for the collective
interests of
State Mental Health Authorities at the national
level, analyzes trends in the delivery and financing
of mental health
services, and builds and disseminates knowledge and
experience
reflecting the integration of public mental health
programming in
evolving healthcare environments.
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On this page:
Additional References
Additional references are provided in table format under the
following topics:
Assessment of Capacity, Psychiatric Advance Directives,
Medical Advance Directive, Stigma of Mental Illness,
Mortality & Morbidity in Persons with Mental Illness,
Suicide -Terminally Ill, Suicide - General End-of-life
Treatment Choices, SF-12 Quality of Life Tools, Serious
Mental Illness, and Grief.
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This information is provided by the Massachusetts Department of Mental Health. End-of-Life Care for Persons with Serious Mental Illness is a multi-faceted project supported by a grant from Promoting Excellence In End-of-Life Care, A National Program Office of the Robert Wood Johnson Foundation. Visit the main Web site at www.promotingexcellence.org/mentalillness/
