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HIV/AIDSNOTE: Some listings include a link to a related Promoting Excellence demonstration project. Also see:
Arnes PJ and Higginson IJ. “What Constitutes High Quality HIV/AIDS Palliative Care?” Journal of Palliative Care, 15: 5-12, 1999. Boland D and Sims S. "Family Care Giving at Home as a Solitary Journey." Images: Journal of Nursing Scholarship, 28(1): 55-58, 1996 Cunningham WE, et al. "Constitutional Symptoms and Health-Related Quality of Life in Patients with Symptomatic HIV Disease." The American Journal of Medicine, 104(2): 129-136, 1998. Curtis JR, Patrick DL, Caldwell ES, Collier AC . "Why Don't Patients and Physicians Talk About End-of-Life Care? Barriers to Communication for Patients with Acquired Immunodeficiency Syndrome and Their Primary Care Clinicians." Archives of Internal Medicine, 160(11): 1690-1696, 2000. Justice AC, Chang CH, Rabeneck L, Zackin R. "Clinical Importance of Provider-Reported HIV Symptoms Compared with Patient-Report." Medical Care Research and Review, 39(4): 397-408, 2001. Kilbourne AM, et al. "Response to Symptoms Among a U.S. National Probability Sample of Adults Infected with Human Immunodeficiency Virus." Medical Care Research and Review, 59(1): 36-58, 2002. Lorenz KA, et al. "Associations of Symptoms and Health-Related Quality of Life: Findings from a national study of persons with HIV infection." Annals of Internal Medicine, 134 (9) (Suppl-Part 2): 854-860, 2001. Mathews WC, et al. "National Estimates of HIV-Related Symptom Prevalence from HIV Cost and Services Utilization Study." Medical Care Research and Review, 38(7): 750-762, 2000. O’Neill JF and Alexander CS. “Palliative Medicine and HIV/AIDS.” Primary Care, 24: 607-615, 1997. O'Neill JF and Marconi K. "Underserved Populations, Resource-Poor Settings, and HIV: Innovative Palliative Care Projects." Journal of Palliative Medicine, 6(3): 457-459, 2003. O’Neill, JF Marconi K, Suprepruik A and Blum N. “Improving HIV/AIDS Services through Palliative Care: An HRSA Perspective.” Journal of Urban, 77: 244-254, 2000. Pace JC and Stables JL. “Correlates of Spiritual Well-being in Terminally Ill Persons with AIDS and Terminally Ill Persons with Cancer.” Journal of the Association of Nurses, 8: 31-42, 1997. "Providing HIV/AIDS Care in a Changing Environment: Spirituality and Treatment of People Living with HIV Disease." HRSA Care Action, U.S. Department of Health and Human Services, March 2003. Selwyn PA, et al. "Palliative Care for AIDS at a Large Urban Teaching Hospital: Program Description and Preliminary Outcomes." Journal of Palliative Medicine, 6(3): 475-487, 2003. Selwyn PA and Arnold R. “From Fate to Tragedy: The Changing Meanings of Life, Death, and AIDS.” Annals of Internal Medicine, 129: 899-902. Selwyn PA and Forstein M. “Overcoming the False Dichotomy of Curative vs Palliative Care for Late-Stage HIV/AIDS.” JAMA- Journal of American Medical Association 290(6): 806-814, 2003. Sims S, Boland D, O'Neill C. "Decision-Making in Home Health Care." Western Journal of Nursing Research, 14: 186-200, 1992.
Manuals Resource Manual for Providing Hospice Care to People Living With Aids. National Hospice and Palliative Care Organization: Alexandria, Va., 1996. A Clinical Guide to Supportive & Palliative Care for HIV/AIDS. O'Neill JF, Selwyn PA, and Schietinger H (eds). Washington, D.C.: Health Resources and Services Administration, 2003. Palliative Care for People with HIV/AIDS: A Curriculum and Teaching Resource for Medical Educators. A Project of the Northwest AIDS Education & Training Center. The Center for Palliative Care Education, University of Washington, Seattle, WA. 2003. www.uwpallcare.org (Also available on CD-ROM)
Websites
Promoting Excellence in End-of-Life Care was a national program of the Robert Wood Johnson Foundation dedicated to long-term changes in health care institutions to substantially improve care for dying people and their families. |
