Health-Related Quality-of-Life Instruments Available and Used with Patients with ALS
Assesses the quality-of-life instruments available and being used for ALS patients noting key citations, advantages, disadvantages and comments.
Educational Tools - Clinician Education
The Amyotrophic Lateral Sclerosis Workgroup of
Promoting Excellence in End-of-Life Care
Hiroshi Mitsumoto, MD, Chair
Hiroshi Mitsumoto, MD
Chair, ALS Workgroup
Eleanor & Lou Gehrig MDA/ALS Center
College of Physicians & Surgeons
Columbia University Neurologic Institute
New York, NY
Recommendation of the workgroup for use of this instrument:
To be used by the clinician in assessing the best instrument to choose when addressing quality-of-life issues with the ALS patient.
quality of life, quality of death, emotional well-being, care plan, ALS
To use this tool:
You may print and copy this tool for your own use from the website. Please credit source.
Produced by the ALS Workgroup.
To view this tool:
ALS Appendix B, p 62 ( PDF 835 KB / 62 pages)
Posted March 10, 2005
Completing the Continuum of ALS Care: A Consensus Document
# ALS06, type:clinician_education
Promoting Excellence in End-of-Life Care was a national program of the Robert Wood Johnson Foundation dedicated to long-term changes in health care institutions to substantially improve care for dying people and their families. Visit PromotingExcellence.org for more resources.