PedsQL™ Pediatric Quality of Life Inventory Version 4.0 (by Varni)
This instrument measures quality of life for patients with advanced disease.
Clinical Care Tools - Quality of Life
Children's Hospital and Regional Medical Center
Pediatric Palliative Care Project
Mail Stop CM - 11
4800 Sand Point Way, N.E.
Seattle, WA 98105
How the grantee used this instrument:
Self-administered by parent or guardian and/or patient with in-person assistance from Consultant at the pre-enrollment home visit. Parent and/or patient responds to telephone interview every three months.
pediatrics, quality of dying, patient experience
To use this tool:
For information about using this tool, log on to www.pedsql.org. Permission of the author is required for use of this tool. This link provides license agreement information for limited use of the tools and contact ordering information.
Varni, et al., "The PedsQL: Measurement Model for the Pediatric Quality of Life Inventory." Medical Care, In Press.
Posted September 2003
Children's Hospital and Regional Medical Center overview page
# CHRMC7, type:quality_lifePromoting Excellence in End-of-Life Care was a national program of the Robert Wood Johnson Foundation dedicated to long-term changes in health care institutions to substantially improve care for dying persons and their families. Visit PromotingExcellence.org for more resources.