Name:
Children's Hospital: Easing Pain & Symptom as Illness Progresses: Relief
Guide for Families (Pomietto)
Definition:
This reference manual is for families who have children who are nearing the
end of their life. The manual was written by parents and medical professionals.
It includes information on decision-making and communication that applies
to anyone with a complex medical condition, but most of the practical information
about pain management and emotional support relates more to end-of-life issues.
Category:
Educational Tools - Patient/Family Education
Source:
Children's Hospital and Regional Medical Center
Pediatric Palliative Care Project
Mail Stop CM - 11
4800 Sand Point Way, N.E.
Seattle, WA 98105
www.cshcn.org
Contact:
Beth McKinstry
bmckin@chmc.org
How the grantee used this instrument:
The manual was provided to Hospice nurses who were serving families as palliative
care nurse case managers. Those nurses used their discretion in giving the
manual to families as indicated.
Keywords:
pediatrics, patient information, family information
To use this tool:
To request a copy of this guide or to obtain further information about the
guide email Beth McKinstry, bmckin@chmc.org.
Posted September 2003
Children's Hospital and Regional Medical Center overview page
# CHRMC11, type:patient/family_education
Promoting Excellence in End-of-Life Care was a national program of the Robert Wood Johnson Foundation dedicated to long-term changes in health care institutions to substantially improve care for dying persons and their families. Visit PromotingExcellence.org for more resources.
