Promoting Excellence : PEACE - After Death Family Interview

Name:
University of Chicago: PEACE - After Death Family Interview

Description:
This interview is for family members of patients with dementia who have died, used in part to evaluate care delivered to PEACE enrollees.

Category:
Evaluation - Satisfaction/Perception of Care

Source:
Palliative Excellence in Alzheimer's Care Efforts (PEACE)
University of Chicago Medical Center
Section of Geriatrics (MC 6098)
5841 South Maryland Ave.
Chicago, IL 60637

Contact:
Gavin W. Hougham, Research Director
[email protected]

Greg A. Sachs, Chief, Section of Geriatrics
[email protected]

How the grantee used this instrument:
Some months after the death of a PEACE patient enrollee, we interviewed the surviving family caregivers, usually by telephone. In part, we used the interview to evaluate the care delivered to PEACE enrollees, but we added many additional questions, for example, about the caregiver grieving process.

Keywords:
after-death, post-death, caregiver survey, caregiver experience, bereavement

To use this tool:
This tool draws items from several published instruments (see references below). You may need to seek permission from the original authors before using this tool.

References:
Items Obtained from the medical record:

Luchins, DJ, Hanrahan, P, & Murphy, K,"Criteria for enrolling dementia patients in hospice." Journal of American Geriatric Society 1997;45:1054-1059.

Reisberg, B, "Functional Assessment Staging (FAST)." Psychopharmacology Bulletin 1988;24:653-659. Staging of dementia severity.

Hughes, CP, Berg, L, Danziger, WL, et al. "A new clinical scale for the staging of dementia." British Journal of Psychiatry 1982;140:566-572.

Charlson, ME, Pompei, P, Ales, KL, & MacKenzie, CR "A new method of classifying prognostic comorbidity in longitudinal studies: development and validation." Journal of Chronic Diseases 1987;40:373-383.

Items obtained from patient interview/observation:

Toolkit of Instruments to Measure End of Life Care (http://www.chcr.brown.edu/pcoc/toolkit.htm)

Yesavage, JA, Brink, TL, & Tose, TL, "Development and validation of a geriatric depression scale: a preliminary report." Journal of Psychiatric Research 1983;17:37-49.

Folstein, MF, Folstein, SE, & McHugh, PR, "Mini-mental state:A practical method for grading the cognitive state of patients for the clinician." Journal of Psychiatric Research 1975;12;12:189-198.

Feldt, KS, Ryden, MB, & Miles, S, "Treatment of pain in cognitively impaired compared with cognitively intact older adults with hip fracture." Journal of American GeriatricSociety 1998;46:1079-1085.

Herr, KA, & Mobily, PR. "Comparison of selected pain assessment tools for use with the elderly." Applied Nursing Research 1993;6:39-46.

Items obtained from caregiver interview:

Toolkit of instruments to Measure End of Life Care (http://www.chcr.brown.edu/pcoc/toolkit.htm).

Teri, L, Truax, P, Logsdon, R, et al, "Assessment of behavioral problems in dementia; the revised memory and behavior problems checklist." Psychology of Aging 1992;7:622-631.

Cohen-Mansfield, J, "Agitated behaviors in the elderly:II. Preliminary results in the cognitively deteriorated.: Journal of American GeriatricSociety 1986;34:344-348.

Beck, AT, & Beck, RW, "Screening depressed patients in family practice: a rapid technique." Postgraduate Medicine 1972;52:81-85.

Katz, S, Ford, AB, Moskowitz, RW, et al, "Studies of illness in the aged: the index of ADL." The Journal of the American Medical Association 1963;185:914-919. Instrumental Activities of Daily Living (ADLs).

Lawton, MP, & Brody, EM. "Assessment of older people: self-maintaining and instrumental activities of daily living." Gerontologist 1969;9:179-186.

To view this tool:
Left click on the download link to view the PDF document in your Web browser. Right-click on the download link to save the document to your computer.
pdf PDF 47 KB / 10 pages (Viewing PDF files requires downloading and installation of the free Adobe Acrobat Reader.)

Posted September 2004

University of Chicago: PEACE overview page


# UCP10, type:satisfaction/perception_care


Promoting Excellence in End-of-Life Care was a national program of the Robert Wood Johnson Foundation dedicated to long-term changes in health care institutions to substantially improve care for dying people and their families. Visit PromotingExcellence.org for more resources.

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