Promoting Excellence : Caring for a Loved One with Advanced Dementia Caregiver's Manual

University of Chicago/Hospice of Michigan: Caring for a Loved One with Advanced Dementia Caregiver's Manual

This 28-page manual is a guide for families of individuals with advanced dementia and in need of hospice care.

Educational Tool - Patient/Family Education

Palliative Excellence in Alzheimer's Care Efforts (PEACE)
University of Chicago Medical Center
Section of Geriatrics (MC 6098)
5841 South Maryland Ave.
Chicago, IL 60637

Gavin W. Hougham, Research Director
[email protected]

Greg A. Sachs, Chief, Section of Geriatrics
[email protected]

How the grantee used this instrument:
This book was developed to help families prepare for and confront the difficult issues they will face as their loved one reaches the advanced stages of dementia, when medical interventions such as feeding tubes, ventilators, CPR and medications can be more painful and disruptive than helpful. The manual guides caregivers in asking the right questions to determine whether or not to treat infections, insert a feeding tube, or use CPR if the patient goes into cardiac arrest. It helps them decide if palliative, or comfort care, rather than aggressive treatment is the best choice.

dementia, Alzheimer's, caregivers, coping and illness, family members, mental health, caregiver information, caregiver training, family information, family training, patient information, patient training

To use this tool:
To read more about this manual and obtain ordering information visit the web site, to the M. Allessee Center link and click on Caregiver Manual. Or call: 1.800.337.3827 to order.

Developed specifically for this project by the project team.

To view this tool:
Go To:

Posted September 2004

University of Chicago: PEACE overview page

# UCP30, type:patient/family_education

Promoting Excellence in End-of-Life Care was a national program of the Robert Wood Johnson Foundation dedicated to long-term changes in health care institutions to substantially improve care for dying people and their families. Visit for more resources.

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